Sunday, October 5, 2014

Pinktober and PET scans and Cancerversaries, oh my!

Disclaimer: This post is going to bounce around like crazy.  I haven't regularly posted on my blog in 5 years and I am definitely out of practice...! I have many people inquiring about my health, and Scott asked me to start blogging again.  He is probably right. It is helpful to me to write about my cancer, and it is helpful to those who are interested in following my story, so here goes....

It is officially "Pinktober" which means it is time for my Making Strides fundraiser.  I started fundraising super late this year.  Ooops.  I guess I have been distracted...like super distracted. So distracted that I missed blogging about my 7th Cancerversary!  How could that be?  My cancerversaries are something I look forward to each year. Since the spring I have had weird cancery things going on and I guess I was more focused on them than on the cancer awesomeness called zero progression!

If you look back at my blog, I stopped writing about cancer in 2009.  I just had nothing else to say.  Everything was status quo.  Nothing new except drug changes and Tumor Markers bouncing around.

Speaking of drugs, I believe I am completely out of AI's (Aromatase Inhibitors). I have taken all that I can, in that past 7 years I have taken the following oral drugs to maintain my current status of stableness: Tamoxifen. Arimidex (4 years), Aromasin, Faslodex (ass shots that HURT), Lapatinib (Tykerb is the brand name- it almost killed me.  Not joking.  My liver enzymes went crazy, but the drug worked on my cancer-go figure!) Tamoxifen again, and Megace (which made me gain a ton of weight in the few weeks I took this drug).  For the first time in over 7 years, I am on NO oral meds.  It is awesome and terrifying all at the same time.  My doctor took me off my oral meds because they were not working. I know these drugs are not working because my tumor markers are the highest they have ever been my 15-3 is 92.7 a normal level is considered 0-47. So, I am out of options.  Next I move on to oral chemo.  The current plan is start Navelbine  by infusion for an indefinite amount of time.  However, depending on my next scan, this plan may change.

Speaking of scans, I have a PET scan on Tuesday.  I am kind of nervous about it.  I have been feeling miserable for a week or so.  I can't describe it, I just feel yucky. Keep in mind that when you are a metastatic breast cancer patient it is hard not to think that every little thing is more cancer growing in your body.  My cancer to date was undetectable at the beginning. I had no idea that cancer cells were invading my body.  No pain or symptoms whatsoever. So, since I feel crappy I am going to assume that my symptoms are a result of the weather change an my age and leave it at that!  ;)

I have had backpain for a long time, like years.  My back pain is super bad this week, but again we are going to assume it is the weather change and the fact that I am getting older.  I have had a bulging disk for over 3 years.  I have yet to see a doctor (other than my oncologist) about the pain and discomfort.  I am thinking I will wait until I can't move.  :)

I do realize that everything I just wrote about are completely foreign ideas to most people, and that very little of this will make sense to most.  I have been battling cancer for over 7 years and I am well versed in my disease. I have learned so much about breast cancer and cancer in general, it is quite amazing.  I feel that if I can help one other person with their cancer battle, then all of this was worth it, cancer can be so scary and I'm always looking to help others.

Sunday, June 23, 2013

Another Cancerversary

Six years ago today my life changed forever. 

Six years ago today I was diagnosed with breast cancer. 


Since I refuse to let cancer defeat me, and I certainly cannot ignore it, 


since I deal with cancer as a chronic disease, that I must monitor seriously, 


since I have infusions every three weeks for the rest of my life, 


since I am fortunate enough to have doctors and nurses that care deeply about me and vice versa,


since I live an absolutely normal life outside of my cancer diagnosis, 


since six years ago today my life changed forever.


While most people don't celebrate the day that they were diagnosed with cancer,


Today is not a day I try to forget. 


Today is a day I choose to celebrate every year. 


Six years ago today I was diagnosed with stage IV cancer. Today is my 6th cancerversary and I feel better than ever. My disease is stable, and to me, my cancerversary is almost like another birthday. It's a rite of passage in my life and I am looking forward to achieving many more cancerversaries!

Sunday, April 29, 2012

I think I can

I think I can....I think I can....I think I can....





Make it to my 5 YEAR cancerversary. Wow, how time flies!

Monday, June 22, 2009

Cancerversary

Today is my two year cancerversary, and I couldn't be happier. Today I had a routine bone scan. Results show that my existing bone lesions are improving, and there are no new lesions. What else could a cancer patient ask for?

:)

Overall, I am doing great! I have a MUGA this week to check my heart... after all, it is routine scan time. I expect to everything to be fine this time.

I am working away at summer school, finishing up the high school yearbook, and selling pampered chef! In all my free time (ha ha) I am learning to play golf, trying out new recipes and traveling. Summer is keeping me a busy bee and I couldn't be happier!

Saturday, March 21, 2009

Oh What a Feeling....

Port surgery was absolutely successful. Steri-strips are off, incision is healing! " Maxi" is one happy girl!

In other news, I just learned that a girl that I went to high school with was also diagnosed with stage IV cancer. Ironically, she lived on the next street over from me during our high school days. I can't help but think there was something in the water...

Her and her family have been in my thoughts everyday since I learned of her news. Cancer is a crazy thing. It knows no boundaries and I hate it.

In happier news, I can honestly say that I feel the best I have felt in two years! My energy has finally returned and I actually feel normal-ish. I have begun to book pampered chef parties again, and am getting on with my life. I have been exercising which gives me energy. Next I plan to work on cleaning up my diet...this steroid weight has to come off sometime, right? It surely isn't going away on its own. No time like the present!

Oh, and one more thing that has been a HUGE mood enhancer....IT'S SPRING!

(Happy Birthday, Lindsey!)

Thursday, March 5, 2009

Gearing up....

For another surgery! Tomorrow morning (March 6) I am getting my port replaced. I can't WAIT! I am getting a purple power port.

My port hasn't worked for months. It allows medication in, but it won't let blood out. My veins are so shot that the last time I had a blood test (which is every three weeks) they could only get my blood by taking it from my knuckle.

Gross? Yes.

I almost fainted.

Literally.

I had to lay flat and get a cold compress.

I almost puked.

As a result, I drew the line at the knuckle blood draw and asked for a new port. My new "power port" is made for administering IV treatment, withdrawing blood, and I can use it for the contrast that is administered during scans. WAAAHHHOOOO. Power port means less needle sticks in the arm, and I am ALL about it!
:)

Thursday, January 29, 2009

And The Good News Continues....

SO, All my scans came back with no change. I think this is the first time ever that my scan reports came back with nothing significant. On top of that my tumor markers - which is a test of blood proteins that look for evidence of Cancer cells (more here and here) have all gone down. They are still slightly elevated, but they are significantly lower than they were in October.

HURRAY!

Saturday, January 24, 2009

Stop the inscanity!

Ok. Good news. All scans (ct of brain, chest, abdomen, and pelvis, mammogram and bone scan) came back with NO CHANGE. This is good. No new spots, no evidence of new metastasis. I am one happy camper!
:)
In other news, I have gained a ridiculous amount of weight and I am beginning to finally work on my own physical and mental health, rather than focus on recovering from surgery and breast cancer treatment. I am determined to once again feel comfortable in my own skin.

In yet OTHER news, my nephew is WALKING! He is such an adorable little boy I just can't stand it. Check him out!

Monday, January 5, 2009

Yahoo!

Bone Scan came back with no change. Yahoo! Maintenance drugs are doing their job!

Friday, January 2, 2009

Beginning The New Year With Scanxiety

Two days into the new year...and it is that time again.

I had my routine bone scan today. In two weeks I will have my routine CT Scan and Mammogram. We won't have results for a few days...so I am trying to be patient. I don't like surprises, so I hope everything comes back clean.