Sunday, October 26, 2014

Navelbine

While my most recent PET scan came back stable, my tumor markers (TM) continue to rise, in fact they are the highest they have ever been.  Tumor markers are not a perfect science and some doctors choose not to use them.  However for me, tumor markers have always been indicative of the need for a med change.  If my TMs rise, it means my cancer is on the move and it is time for a med change.

SO, we have a dilemma.  My tumor markers are super high, and have been on the upward trend since April. My scans are stable.  Do we do nothing and just wait for cancer to invade my body, or do we take a proactive approach and treat....a number?  Doctors don't treat numbers, they treat cancer...but perhaps my cancer is so microscopic that some rogue cells are acting up somewhere?  What is a girl to do?

My doctor and I decided to take the proactive approach.  Last week I started taking a maintenance chemotherapy called  Navelbine. Friday I had my second dose which completes my first cycle (a cycle is two doses.  Two weeks on, one week off).  I certainly hope I am not going through this for nothing.  It is weird to be on chemo again, especially when there is no specific cancer activity or tumor to measure...except a number.

Navelbine has been an interesting trip for me so far.  After my first dose last Friday, I was extremely nauseous for three days.  I took Zofran (anti-nausea) around the clock all three days.  Tuesday morning I woke up feeling mostly normal and the rest of the week was fine.  Then this Friday I had my second dose and while I am still taking Zofran around the clock the nausea isn't bothering me as bad...this week it is the fatigue.  I feel like my leg bones have been injected with cement.  I forgot about chemo fatigue. Convenient, no?

This is what my chemo looks like.  From left to right, steroid pre-meds (Decadron), flush bag of saline,  anti-nausea (Aloxi) and the last syringe on the right side is the actual chemo Navelbine.

All those meds pumping through my veins made me feel FREEZING. This is my freezing face.

And this is the aftermath.  The day after chemo (yesterday) I just couldn't muster the energy to move.  I was SO exhausted and frustrated and humbled.  My brain was going a mile a minute and I wanted to be functional, but my body said NOPE.  I am not used to feeling so helpless.  I wanted to run errands and take care of my weekend responsibilities, but I didn't even feel safe enough to drive.  It sucked.  I cried.  I do NOT sit still well and my body just wasn't listening to my brain.

Today I feel better.  Not 100%, but better.  


I participated in my annual Making Strides Against Breast Cancer walk today.  Two of my co-teachers joined me this year, and one stopped by to drop off the penny drive money that my school raised which was completely awesome.
  I think my school raised around $600 in PENNIES.  We dropped off a huge box of change to the "money room" at the walk.  I feel so bad for the folks that have to count and wrap all that change.  It was a SUPER heavy box.  



At the walk today I got to see my awesome doctor out of her lab coat.  She also participated in the walk.  She is the BEST...I cannot express how much I adore my doctor.  After seeing her every 3 weeks for seven and half years, she is like family.

As we were walking, I had a harsh realization. When we were just shy of the halfway point I realized I wasn't going to be able to make it the whole way.  Another humbling and frustrating reality. I understand that it takes 72 hours for the chemo to work through my system, but seriously?!  I don't have patience for this wussy business.  We turned around and started heading back and then I had to stop and rest.  SERIOUSLY?!  Whose body is this?  Oh my goodness, I suck.

Regardless, we made it to the finish line, then I went to SAMs club and the grocery.  I knew if I stopped moving I would be down for the day.  I totally overdid it today, but it was worth it,  I finally got some stuff done!


Sunday, October 5, 2014

Pinktober and PET scans and Cancerversaries, oh my!

Disclaimer: This post is going to bounce around like crazy.  I haven't regularly posted on my blog in 5 years and I am definitely out of practice...! I have many people inquiring about my health, and Scott asked me to start blogging again.  He is probably right. It is helpful to me to write about my cancer, and it is helpful to those who are interested in following my story, so here goes....

It is officially "Pinktober" which means it is time for my Making Strides fundraiser.  I started fundraising super late this year.  Ooops.  I guess I have been distracted...like super distracted. So distracted that I missed blogging about my 7th Cancerversary!  How could that be?  My cancerversaries are something I look forward to each year. Since the spring I have had weird cancery things going on and I guess I was more focused on them than on the cancer awesomeness called zero progression!

If you look back at my blog, I stopped writing about cancer in 2009.  I just had nothing else to say.  Everything was status quo.  Nothing new except drug changes and Tumor Markers bouncing around.

Speaking of drugs, I believe I am completely out of AI's (Aromatase Inhibitors). I have taken all that I can, in that past 7 years I have taken the following oral drugs to maintain my current status of stableness: Tamoxifen. Arimidex (4 years), Aromasin, Faslodex (ass shots that HURT), Lapatinib (Tykerb is the brand name- it almost killed me.  Not joking.  My liver enzymes went crazy, but the drug worked on my cancer-go figure!) Tamoxifen again, and Megace (which made me gain a ton of weight in the few weeks I took this drug).  For the first time in over 7 years, I am on NO oral meds.  It is awesome and terrifying all at the same time.  My doctor took me off my oral meds because they were not working. I know these drugs are not working because my tumor markers are the highest they have ever been my 15-3 is 92.7 a normal level is considered 0-47. So, I am out of options.  Next I move on to oral chemo.  The current plan is start Navelbine  by infusion for an indefinite amount of time.  However, depending on my next scan, this plan may change.

Speaking of scans, I have a PET scan on Tuesday.  I am kind of nervous about it.  I have been feeling miserable for a week or so.  I can't describe it, I just feel yucky. Keep in mind that when you are a metastatic breast cancer patient it is hard not to think that every little thing is more cancer growing in your body.  My cancer to date was undetectable at the beginning. I had no idea that cancer cells were invading my body.  No pain or symptoms whatsoever. So, since I feel crappy I am going to assume that my symptoms are a result of the weather change an my age and leave it at that!  ;)

I have had backpain for a long time, like years.  My back pain is super bad this week, but again we are going to assume it is the weather change and the fact that I am getting older.  I have had a bulging disk for over 3 years.  I have yet to see a doctor (other than my oncologist) about the pain and discomfort.  I am thinking I will wait until I can't move.  :)

I do realize that everything I just wrote about are completely foreign ideas to most people, and that very little of this will make sense to most.  I have been battling cancer for over 7 years and I am well versed in my disease. I have learned so much about breast cancer and cancer in general, it is quite amazing.  I feel that if I can help one other person with their cancer battle, then all of this was worth it, cancer can be so scary and I'm always looking to help others.